Karen was moved to a new room on Friday, it's much quieter than MICU and she has the room to herself. They continued to adjust the medication and she is more alert every time we see her.
Dr. S talked to us today to show the MRIs to the kids and explain to them what's happening. He told us that Karen has no pain and doesn't worry about what's happening because of where the tumor is. Because connections in her brain are broken she may recognize you but can only get some people's names, for example at one point today everyone was either John the psychiatrist or a security guard. Later she figured out most of our names.
For now she will still be in the rehab hospital and we will take things day by day. She enjoys visitors just not too many at once and she likes having friends stay the night. The flowers she's received brighten up the boring room. Thanks to everyone for these gifts!
Thanks also for all the calls, meals and offers for help! We really appreciate it!
Please keep us in your thoughts and prayers. We will try to keep you posted.
Love,
Jen and family
Sunday, November 25, 2012
Thursday, November 22, 2012
Changes
We've had some changes this week.
Early Wednesday morning Karen had a seizure while sleeping. While we always knew this was something that could happen it was quite something to wake up to after her not having one ever in this 2 year journey. The paramedics got her quickly to the Grace and after some stabilizing and assessing the ICU doctor made the call to transfer her to the MICU at HSC where her doctors and other specialists would be available. Once there she had an EEG, MRI and lots of attention from old friends and great care.
Today we got confirmation that the tumour has progressed significantly since her last MRI in September and that progression had caused the seizure. With anti-seizure medication and steroids for any swelling we have seen steady improvement over the last day and a half. They were also able to remove her breathing tube this morning so communication is becoming easier again.
Tomorrow she will leave MICU and move to another unit to continue to rest, be assessed further and regain function and mobility
Please keep Karen (and me and the kids) in your thoughts and prayers as we move through this new phase of our journey - as she has told you many times your support means so much to us!
Doug
Early Wednesday morning Karen had a seizure while sleeping. While we always knew this was something that could happen it was quite something to wake up to after her not having one ever in this 2 year journey. The paramedics got her quickly to the Grace and after some stabilizing and assessing the ICU doctor made the call to transfer her to the MICU at HSC where her doctors and other specialists would be available. Once there she had an EEG, MRI and lots of attention from old friends and great care.
Today we got confirmation that the tumour has progressed significantly since her last MRI in September and that progression had caused the seizure. With anti-seizure medication and steroids for any swelling we have seen steady improvement over the last day and a half. They were also able to remove her breathing tube this morning so communication is becoming easier again.
Tomorrow she will leave MICU and move to another unit to continue to rest, be assessed further and regain function and mobility
Please keep Karen (and me and the kids) in your thoughts and prayers as we move through this new phase of our journey - as she has told you many times your support means so much to us!
Doug
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